Welcome to Just Joders
Mom of three girls, including twins. Wife to a lucky man. Galactosemia Advocate. Coffee until wine is acceptable. I love Jesus but I cuss a little. I have a lot to say. So I write things. You can read them here!
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Navigating Grief
CONTINUE READING: Navigating GriefI can’t believe it’s been one year since my mom spoke her last words. It was August 15, and she hadn’t been out of bed in two days. We decided it was time for the girls to come say goodbye. Francesca approached her bedside and said, “Hi grandma, it’s me Francesca…I love you.” And ever…
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Where did she go?
CONTINUE READING: Where did she go?Where did she go? I can’t seem to find her. There was a time when you couldn’t shut her up. Through her voice and her writing she spoke her mind. She told people about the love of Jesus. She taught them to pray. A new friend. A college roommate. A total stranger. She spoke with…
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Clinical Trial Update, Funding Cuts, Glow for Galactosemia and more
CONTINUE READING: Clinical Trial Update, Funding Cuts, Glow for Galactosemia and moreLast November our galactosemia community held our breath while we waited for the FDA to make a decision about Govorestat, the clinical trial drug Francesca is on. An approval would mean we would have the first ever treatment for our community – not a cure, but a treatment. A step in the right direction. A…
